Development of the EDAQ-SS and SSHUB

Development and Testing of a Daily Activity Questionnaire for Stroke Survivors and the online StrokeSurvivorsHub.com

Stroke may have an impact on daily activities. To help Stroke Survivors to gain their independence back they need to have a detailed assessment. Patient-Reported Outcome Measures (PROMs) are necessary to understand the limitations from a patient’s perspective.

However, a recent systematic review showed that the existing PROMs for Stroke Survivors to assess daily activities have limitations. There is a growing need for a valid, reliable and comprehensive PROM to assist clinicians and patients to achieve optimum functional outcomes and detect change over time to help with setting treatment goals. Such a PROM exists for the assessment of functional limitations in people with rheumatic and musculoskeletal conditions; the Evaluation of Daily Activity Questionnaire (EDAQ). We want to develop and test a version of the EDAQ for  Stroke Survivors (EDAQ-SS).

WE ARE CURRENTLY RECRUITING TO THIS STUDY

Stroke Survivor who lives in the UK;

  • 18 years old or over
  • have access to internet and to a personal email account
  • can understand, read and write in English

If you find this study interesting, the Participant Information Sheet can tell you more about the study and what it will involve. Please, contact us by using our contact details, if you have further questions to ask about the study.

Downloads

If you decide to take part, please visit www.strokesurvivorshub.com/register to register at the website and to complete an online consent form. Once you have registered, you will have access to the questionnaire at the dashboard.